The nature of the condition means that any child Jono fathers will have a 50 per cent chance of contracting Treacher-Collins. Now Jono has an important question he wants answered - what if my baby was born like me?
The film follows Jono and his girlfriend Laura as they go on a quest to find out the options available to them should they decide to start a family. Jono meets a variety of families who have faced or are facing this very conundrum. He also meets with youngsters affected by Treacher-Collins to see if attitudes have changed since his days at school.
Confronted by all the options, what will they decide? And will the decisions they make draw them closer together?
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